Showing posts with label fibromyalgia. Show all posts
Showing posts with label fibromyalgia. Show all posts

Thursday, October 4, 2012

Musical Cure


Once again a post about my health issues.
(but I'm giving you a great song to listen to and watch while I whine) :-)

I am a new-ish chronic pain patient- people who have read my posts have been hearing of my issues for a bit less than 2 years now.

I am working on getting my 4th and 5th opinion- today at the new Neurologist, then in 2 weeks at a Dr who is known as a "fabulous diagnostician."

Everyone says the same thing- I am now a "chronic pain patient"- my pain is due to severe nerve damage due to years of compression from bulging discs and compressed vertebrae. It is Nerve pain- not muscle, (which I have been saying all this time) and that really there isn't much they can do other than burn off the nerve roots every year or so and manage my pain with meds, exercise and good nutrition.

I'm the perfect model of a medical marijuana patient as well- It is a badge I have no shame about- and I am open about my status with anyone who counts. I have to use whatever works- and MM is one of the only things I've found that helps me find some comfort- Without killing my stomach. I never smoke before driving or being with my son or his friends. Responsible is really my middle name.

Yes, I know what kind of pain I have. I know my talking about my pain in the neck can be a real pain in the neck.  I'm sorry, I just can't help complaining- especially when the pain gets this bad. Like today, where I haven't slept a full night in 5 days.

I try to keep it positive by scheduling things that I will look forward to, like concerts!

Last night I at least had a respite from the agony, and went to a fantastic concert by the Shins, one of my favorite "go to" bands. Here is a video of them performing "Know your Onion" at the concert last night. (link is here too:  Shins Concert- "Know your Onion")

A special shout out also to my date for the night, Eric Fest- my BFF's hubby who also happens to be a friend of mine too. Eric is a big alt music fan too and is filling in the gap that is left by my hubby Guido's refusal to come to any concerts with me. In Guido's defense, he has a hearing condition that makes going to concerts with electrified instruments particularly painful.
Hey, I KNOW about pain. I get it- you do what you have to do to relieve yourself of the pain- including leaving concerts. (I know now not to spend the money on a ticket for him- I get it for a friend instead!

So I'll just keep on looking at coming attractions- I know that the Rialto theater in Tucson is scheduling some great concerts- Tegan and Sarah are coming in a few months, as is Sleigh Bells and Aimee Mann. (I think I'll go to T and S)
I promise to not bore you too much about my nerve pain- or, at least when I complain I'll also post a pretty picture or video to balance out the whine :-\

thanks for all of your support!
ciao- Maureen

Friday, September 7, 2012

Wheat free? Me?

After having 2 years of intense chronic pain (and going through a myriad of painful treatments and surgery) my Dr finally told me to try wheat free.
OK, I'll fess up- She HAD mentioned it before, a few times but I resisted mostly I thought it would be difficult (as I am married to a real life in the flesh Florentine Italian who is truly in love with his pasta and bread...and is thin as a rail at 50 years old) Plus she hadn't really told me to do it- she had just suggested.
Honestly, I am very diet resistant due to my lifetime of always being a bit on the pudgy side (unless I was starving myself, like one year in High School that I actually became skeletal and sick) At 5'1" a pound doesn't have many places to hide- Over the years I had pretty much resigned myself to thinking that unless I really suffered and dieted I was always going to be shaped like a Pug, never a Whippet.
Well, back to the Wheat free- I am so desperate to feel better that I've decided to really give wheat free a good try. I stopped eating wheat since the moment my Dr told me I should (about 8 days ago)
And I'm honestly surprised at how easy this shift has been for me.
I think having a few friends who have wheat allergies/Celiac disease Does help me. I have for years kept mental notes about new gluten free stuff I see and now (that I have my nifty Iphone) I often will shoot them a photo of a great gluten free Menu. I have in effect already done my shopping.
AND I've done my shopping. First day ASAP I went to Trader Joes and did a Gluten free shopping trip. Piece O'(gluten free) cake! My friends had told me about the "only good Gluten free bread out there" Udi's bread (it's not bad!) and I found many other good alternatives- for Cereal and pasta too.

I have always had a terrible time waking up- I would fall back to sleep in a second- deep in a hazy waking slumber. But today I woke a full hour before my early morning alarm- with a refreshed feeling that I don't ever recall having in the morning. EVER! Oh, and then I went about my day on MINIMAL pain medications (until 5 pm when the day's activities took their toll). Do I think it was because of the lack of wheat? Honestly, I'm too much of a cynic to jump on the bandwagon so soon...but I'm cautiously optimistic about this change in diet. Oh, and if I start losing my pudge? I would be OH SO SOLD on a wheat free future.
Stay tuned- I'll surely revisit this topic again in the near future. Meanwhile, I will be reading a new book that I just bought on the interwebs: "Wheat Belly" by Dr William Davis . I'll do a review once I've read it. (warning: I am a slow reader- I like to savor and digest what is written. For current reviews you can check the book's Amazon page: http://www.amazon.com/Wheat-Belly-Lose-Weight-Health/dp/1609611543 )

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