Musical Cure

Once again a post about my health issues.
(but I'm giving you a great song to listen to and watch while I whine) :-)

I am a new-ish chronic pain patient- people who have read my posts have been hearing of my issues for a bit less than 2 years now.

I am working on getting my 4th and 5th opinion- today at the new Neurologist, then in 2 weeks at a Dr who is known as a "fabulous diagnostician."

Everyone says the same thing- I am now a "chronic pain patient"- my pain is due to severe nerve damage due to years of compression from bulging discs and compressed vertebrae. It is Nerve pain- not muscle, (which I have been saying all this time) and that really there isn't much they can do other than burn off the nerve roots every year or so and manage my pain with meds, exercise and good nutrition.

I'm the perfect model of a medical marijuana patient as well- It is a badge I have no shame about- and I am open about my status with anyone who counts. I have to use whatever works- and MM is one of the only things I've found that helps me find some comfort- Without killing my stomach. I never smoke before driving or being with my son or his friends. Responsible is really my middle name.

Yes, I know what kind of pain I have. I know my talking about my pain in the neck can be a real pain in the neck.  I'm sorry, I just can't help complaining- especially when the pain gets this bad. Like today, where I haven't slept a full night in 5 days.

I try to keep it positive by scheduling things that I will look forward to, like concerts!

Last night I at least had a respite from the agony, and went to a fantastic concert by the Shins, one of my favorite "go to" bands. Here is a video of them performing "Know your Onion" at the concert last night. (link is here too:  Shins Concert- "Know your Onion")

A special shout out also to my date for the night, Eric Fest- my BFF's hubby who also happens to be a friend of mine too. Eric is a big alt music fan too and is filling in the gap that is left by my hubby Guido's refusal to come to any concerts with me. In Guido's defense, he has a hearing condition that makes going to concerts with electrified instruments particularly painful.
Hey, I KNOW about pain. I get it- you do what you have to do to relieve yourself of the pain- including leaving concerts. (I know now not to spend the money on a ticket for him- I get it for a friend instead!

So I'll just keep on looking at coming attractions- I know that the Rialto theater in Tucson is scheduling some great concerts- Tegan and Sarah are coming in a few months, as is Sleigh Bells and Aimee Mann. (I think I'll go to T and S)
I promise to not bore you too much about my nerve pain- or, at least when I complain I'll also post a pretty picture or video to balance out the whine :-\

thanks for all of your support!
ciao- Maureen

update on the Wheat free

So it's been a few weeks now that I have been wheat free (mostly- I cheat with black licorice, which to me is a staple food and it has some sort of wheat product in it, but not like it's a dinner roll)

I honestly can say that going off wheat has been much easier than I had anticipated- My biggest worry was my Italian husband, who is a total bread fanatic. I mean completely over and above bread love, it's become obsession. Thankfully, we have Barrio Bread co. here in Tucson so we can pick out our favorite loaves every Wednesday at Cosmo's school (Yay Waldorf!) Anyhoo- that's completely off point....well, not completely, but note that Guido + Bread = LOVE.

So- the Wheat free lifestyle, well, it started with a trip to Trader Joes. I went to my fave TJ's (we are spoiled with multiple Trader Joes here in Tucson) and I bought a whole bunch of gluten free/wheat free items. A few of my friends were working there that day so I got lots of helpful suggestions. (thanks guys) I bought corn pastas, Udi bread, lots of fruits and veggies and gluten free cereal (Barbara's Puffins).

I already eat a very good diet full of most of the things I've mentioned, so it was no stretch for me to simply substitute bread, cereal and cookies (like I need any cookies!). I noticed the lack of dietary "glue" sticking things together... the bread had a good flavor, nothing compared to Barrio bread, but passable for toast and sandwiches. The pasta was OK- we tried a much better gluten free pasta made from Quinoa...oh, and I found out that I like Quinoa now! Other than the substitutions I was all set. Once I figured out that I could eat popsicles and kettle corn everything was A- OK!

Oh, I will admit I DO miss very much my Bob's Red Mill musli- (one thing that is certain to be re-introduced asap). But other than that I'm fine.

What? How do I feel? Oh, yeah, that IS pretty important. You can figure from my writing that I'm in a good mood today- really good, actually. I still have my pain, nothing really has changed on that part- but I feel Deflated. I HATE feeling full, so I eat just until I am satisfied...but always would feel puffy and kind of pushed around by my food.
I notice a calm- I feel simply fine- the medicines are doing their jobs, as long as I remember to take them in time, and I am waking up feeling rested in the mornings (something I've NEVER experienced before!) My insomnia is still showing up every once in a while- I've been sleeping on the couch much less lately.

that's pretty much it for my update- I'm sure there are more things I will remember but my hands are hurting and I need to stop typing!
Ciao for now- Maureen